Before undertaking any effort in life, such as these Ten Commandments,
always know that perfection is a false goal. Perfection in caregiving
should be avoided at all times. These Ten Commandments are not for
perfectionists and are created only for caregivers committed to the
concept of “doing
your best, no more nor less.”
COMMANDMENT I:
TAKE THE OXYGEN FIRST
As the FAA says, when the plane gets into trouble and the life saving
equipment falls from the upper compartment, you take the oxygen first
and then give it to your child. With only 19 seconds of useful consciousness
in such a situation this approach gives both of you a chance of survival.
Caregiving is no different. At its base, caregiving is an experience
of confusion, challenge and mixed emotions. Love for your family
member and the satisfaction you derive from helping
may create a situation where one sacrifices their lives at the “alter
of caregiving.” That sacrifice gives rise to conflicting emotions
such as guilt, stress, anxiety and a host of other mental health
challenges. It is imperative as a caregiver to take care of one’s
own mind, body and soul by taking the oxygen first.
COMMANDMENT II:
NEVER ASSUME
Caregivers are no different than others in that we tend to make assumptions
about other people and situations before actually having gathered
all of the neede information. In fact, when we make an assumption
we are really passing judgment without even realizing it. How often
do we assume that our loved one knows what we know, or knows what we need
or desire to have happen, when if fact we are not all psychic? The
result of this is often misplaced anger or resentment. Let’s make
a sincere effort to garner all the details before we make assumptions.
COMMANDMENT III:
HAVE ONGOING FAMILY CONFERENCES
Roles and responsibilities are extremely important to
explain to all involved. Ongoing family conferences
maintain the boundaries necessary to the caregiving
process so that no one feels out of control or inadequate.
This is a vital and should be done in person and as
frequently as needed. Family conferences are like tuneups
used to maintain the family car. This car needs to
drive well, efficiently and for a long time. Schedule these
conferences regularly, before the wheels fall off.
COMMANDMENT IV:
DO NOT ISOLATE
Social isolation can detach and separate a caregiver and give rise
to a wide variety of stresses for those taking care
of a loved one. Isolation is dangerous because it cuts off family
members from outside help and support they need
to cope with the stresses of caregiving. Isolation makes it harder
for outsiders to see and intervene in a volatile
situation. Support groups help caregivers feel less isolated creating
strong bonds of assistance and friendship. Participating
in a support group helps caregivers manage stress by
sharing their experiences and helping to improve caregiver>
skills. It may also help you to face that some problems>
have no solutions and that accepting the situation is reality. Join
a Caregiver Support Group today.
COMMANDMENT V:
DO NOT TAKE ANYTHING PERSONALLY
Taking things personally is about self-importance, “the
maximum expression of selfishness,” where we assume
everything is about “me.” As a famous author once said,
“Nothing other people do is because of you. It is because
of themselves.” The actual words said by your loved one
are not what is hurting you; it is that you have wounds
that are touched by what was said.
COMMANDMENT VI:
PLAN AHEAD/HAVE CONTINGENCY PLANS
Murphy's Law is a popular adage in our culture which
broadly states that things will go wrong in any given
situation. In American culture the law was named after
an engineer working for a brief time on USA rocket sled
experiments.
No doubt if you are a caregiver than Plan A needs to be
made but has to be followed up by Plan B, a contingency
plan. Recognize what you can and cannot do, define your
priorities, and act accordingly. Turn to other people for
help - your family, friends, and neighbors. Prepare clear
written list of tasks for anyone who may offer assistance.
Planning ahead is vital as it gets all on the same page,
allows your loved one to feel safe and to have continuity,
lessening their anxiety. What if I go before my loved one
does? The answer is plan ahead!
COMMANDMENT VII:
DO NOT FALL PREY TO SHAME & STIGMA
Shame and stigma have tragic consequences. Caregivers
with mental health challenges fail to see help for
themselves because of the shame associated with their
condition. As a result of this feeling many think they will
experience some form of discrimination, whether in the
workplace, from health insurance plans or in social settings.
They must get help for their behavioral issues in the same
manner they would get help for any other other medical
condition.
Though a loved one is surrounded by medical and
behavioral complications at all times, matters get much
worse if the caregiver represses their own mental health
issues and keeps it in a closet. There is a high need for
ongoing assessments for depression, anxiety, fear, alcohol
usage and many other challenges. Often shame and stigma
prevent vital access to in-depth evaluation of those on the
caregiving path. There is no biochemical difference
between a disease of the brain and a disease of the heart.
COMMANDMENT VIII:
USE COMMUNITY RESOURCES
A full complement of support services that address the
caregiver and the recently diagnosed exists in every
community. The quality and the extent of such a continuum
of resources may vary but just know that neither a
caregiver nor their loved one has to be alone. Supportive
services may include medical, behavioral, legal, dental
and various psycho-educational support groups
Investigate community resources that might be helpful.
If there is a Leeza’s Place in your community, consult a
Leeza Care Advocate or attend meetings and ask other
caregivers for the resources that have helped them. If
there is not a Leeza’s Place in your community try our
Caregiver Connection Line.
COMMANDMENT IX:
HONOR SACRED MEMORIES
Empower yourself and your family using experiential
approaches to memories. Take time to “remember.” Get
away from it all while relaxing with yourself and your
loved ones. Use photography journaling, scrapbooking,
holiday decorations or any other means to associate with
the endearing “stories” of the family. If there is a Leeza’s
Place near you, make sure you schedule time for LMTV,
Leeza’s Memory Television.
The caregiver and the care receiver can find common and
connective ground in the face of the best and worst of
times. Making sure that all members of the family are
included is vital in this process. This is a great time to
bring children into the process of honoring their elders
and allows loved ones to connect in a valuable way.
Keeping what emerges out of such a dynamic process is
a great way to honor sacred memories and bridge the
generations.
COMMANDMENT X:
FIND HUMOR IN MANY PLACES
“Laughter Is the Best Medicine.” This is an old expression
popularized by Norman Cousin’s book “Anatomy of an
Illness,” in which he describes his battle with cancer and
how he “laughed” his way to recovery. His hypothesis
and the subject of many studies suggest that there are
positive effects to be gained from laughter as a great
tension-releaser, pain reducer, breathing improver, and
general elevator of moods. It sounds miraculous, is not
proven, but studies continue. In short, humor therapy is
valuable and it helps us through difficult or stressful
times.
Try to see the humor in being a caregiver. Try writing on
a card “Have you laughed with your loved one today?”
and placing it in a conspicuous place in the bathroom or
kitchen. Read funny books or jokes, listen to funny tapes
or watch humorous movies or videos that make you
laugh. Try it and you’ll like it!